Dear Folks,
Thank you for passing the message about "Poorly differentiated embryonal rhabdomyosarcoma“ along. People I have never met before have given good advice and offered to find more information about latest developments in this area. I am now a member of a group related to sarcoma and a mailing list too.
The young teenager is under proper medical care at one of the best hospitals in India. He has had chemo and radiotherapy for a year. He is fine now and has to go for follow ups every 3 months. The disease is not very common and the real danger is recurrence. That is why we are trying to get in touch with people who have been through this.
He is very creative, very brave. He paints and writes very well. We are hoping and praying for the best.
Thanking you,
Nirupma
