Dear folks,
Please, if you know of any one who has fought against “Poorly differentiated embryonal rhabdomyosarcoma“, or has a child suffering from this disease, request them to mail me at nirupama.kapoor@gmail.com
I know this young teenager who is fighting very bravely against this disease. The original malignant tumors have disappeared. Now there is a follow up every 3 months.
Is there any thing that can be done to prevent recurrence?
I have gone through the material on the net. It is mostly technical, meant for doctors. I need to get in touch with people who have won against this or are fighting against this. We need practical advice.
I hope and pray that no child ever suffers from this disease. If you have children or teenagers around, please ask them to inform you of any unusual growth or lumps. Early detection increases the chance of cure. Growing children may be painfully sensitive and shy. Please encourage them to communicate.
Please pass this message to as many people as possible.
Thanking you,
Nirupma Kapoor
